Practical guidance for the early days of a childhood cancer diagnosis.
A clear, parent-centered look at CAR T-cell therapy.
Personal writing and reflections beyond science and timelines.
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Recent Posts
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Red light therapy lives just outside standard medical protocols, but has quietly become part of our routine. Here’s what it is, what it can and can’t do, and how we use it for thyroid support, injury recovery, and illness.
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Beaudin turns 14 next month. He is not asking for gifts. He is asking to take lunch to the lab studying the treatment that saved his life – and he wants you to come with us.
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Eight years of pediatric cancer treatment. Eight years of Joshua working from plastic hospital chairs, hospital lobbies, and Philadelphia row homes. This one is for him.
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At a 60-month CAR-T follow-up visit, survivorship comes into focus. labs are good, but knee pain raises the quiet realities of long-term chemotherapy side effects in pediatric cancer care.
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Last week Beaudin and I traveled to CHOP in Philadelphia for his 60-month post HuCAR T-cell follow-up. Here at home, little of our daily life is entrenched in the bone-deep survival that cancer once held. To be clear, it is…
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A parent perspective on trial medicine, care team transitions, and why family remains the central source of continuity in pediatric treatment.
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A reflective look at Of Medicine and Miracles, a documentary exploring the development of CAR T-cell therapy and what its long, uncertain path means for families considering CAR T treatment today.
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A simple, practical gift for someone newly diagnosed with cancer—no platitudes, no inspiration. Just a thoughtful combination of items that make long days and longer nights a little more tolerable.
About
Hi, I’m Betsy. I’m a cancer mom who’s navigated grief, logistics, hope, and everything in between. This site exists because I needed it once — and maybe you do too.
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Thoughtful, lived-experience storytelling centered on pediatric cancer survivorship and the human side of modern medicine.
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Recent Posts
- Not Everything Helpful Is a Protocol: Red Light Therapy Benefits Explained
- Pediatric Cancer Research Funding: Beau’s Birthday and a Broken System
- Employment During Pediatric Cancer: Josh’s story
- HuCAR T: Month 60 Part 2: Growing Pains
- HuCAR T: Month 60- Part 1: Everything is different, but nothing has changed.
- When Trial Medicine means redefining family
- Of Medicine and Miracles: A Documentary About CAR T Therapy
- A “Sorry This Sucks” Gift for the Newly Diagnosed with Cancer